Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Bowel surgery

25th Apr 202227th Mar 2023 Sahara Fleetwood-Beresford

Hair loss in people with IBD

22nd Apr 202227th Mar 2023 Sahara Fleetwood-Beresford

What does remission look like?

11th Mar 202228th Jan 2026 Sahara Fleetwood-Beresford

20 low-residue meal ideas

7th Mar 202228th Mar 2023 Sahara Fleetwood-Beresford

Your relationship with yourself: Self-compassion tips & exercises

25th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Remission doesn’t necessarily mean we’re “well”

14th Feb 202227th Mar 2023 Sahara Fleetwood-Beresford

Dear stoma, I love you because…

19th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

Ostomy life: Progress report

6th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

One step forward… Two steps back

4th Jan 202218th Mar 2024 Sahara Fleetwood-Beresford

HealthCARE anxiety

22nd Nov 202127th Mar 2023 Sahara Fleetwood-Beresford

I can’t hold my pee!

2nd Nov 202127th Mar 2023 Sahara Fleetwood-Beresford

Should we be talking surgery earlier?

21st Oct 202122nd Nov 2024 Sahara Fleetwood-Beresford

Sex after stoma surgery: Honest conversations and practical advice

20th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

Disability Employment Awareness Month

9th Oct 202127th Mar 2023 Sahara Fleetwood-Beresford

How my own actions have negatively impacted my health

4th Sep 202128th Jan 2026 Sahara Fleetwood-Beresford

We’re not “fussy eaters"!

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When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition. It's scorching here right now 🔥 If you're living with #IBD or have had bowel surgery, staying hydrated isn't as simple as drinking more water 💧 Today is a much better day, so I thought I'd better share the celebration!
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Sahara Fleetwood-Beresford | Patient Advocacy
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