Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Tag: Accessible toilets

15th Jun 2023 Sahara Fleetwood-Beresford

What’s a RADAR key and where to get one

#IBD and food fear: What the latest research tells us https://advocatinghealth.com/2026/02/26/ibd-and-food-fear-latest-research/ One of the first questions I had after my #stoma surgery was whether I'd ever be able to lie on my front again. It shouldn't need saying 🙄 The clinical notes usually tell one story, but they often leave out the mental weight of living with a #ChronicIllness. Why would she post that?!! 😳 A diagnosis changes so much more than just your medical records. It often shifts your entire identity, and it is completely valid to mourn the life you thought you would have. It's #EndometriosisAwarenessMonth, and I'm talking about the frustrating diagnostic loop that so many of us find ourselves stuck in. When you live with #ChronicPain in the pelvic or abdominal area, getting a clear diagnosis often feels like a game of ping-pong between specialists. A memory popped into my head yesterday, that made me feel really icky. My #ADHD diagnosis was one week today, and while I’ve spent that time processing, a few things are starting to click into place. It’s a big piece of the puzzle. For a long time, #ChronicPain and #PTSD have been viewed as two VERY separate battles, but some recent research confirms a deep link. My latest blog post, The PTSD and pain link: What the research says, explores how medical trauma from emergency surgeries, hospital stays, or not being believed actually changes our nervous system - link in bio. Since finishing my #reiki training last month, I’ve been following my morning yoga practice with a "strengthening my light" meditation and some mini self-reiki. It’s been a lovely addition to the routine, but it turns out I was much more tired than I realised this morning. 😂 Yikes! 🙈
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