Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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2nd Jun 20187th Dec 2023 Sahara Fleetwood-Beresford

What people with IBD should know

4th Mar 202228th Mar 2023 Sahara Fleetwood-Beresford

Your relationship with yourself: Processing your emotions & body confidence tips

25th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Remission doesn’t necessarily mean we’re “well”

14th Feb 202227th Mar 2023 Sahara Fleetwood-Beresford

Dear stoma, I love you because…

11th Feb 202228th Mar 2023 Sahara Fleetwood-Beresford

Night-time incontinence

9th Feb 202227th Mar 2023 Sahara Fleetwood-Beresford

Dating with an ostomy

28th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

The journey to better teeth

24th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

IBD treatment can be really rough

19th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

Ostomy life: Progress report

6th Jan 202228th Mar 2023 Sahara Fleetwood-Beresford

One step forward… Two steps back

4th Jan 202218th Mar 2024 Sahara Fleetwood-Beresford

HealthCARE anxiety

9th Dec 202128th Mar 2023 Sahara Fleetwood-Beresford

Fighting to be heard in healthcare

7th Dec 202117th Oct 2024 Sahara Fleetwood-Beresford

FAQ | Swimming with a stoma

4th Dec 202127th Mar 2023 Sahara Fleetwood-Beresford

What is crohn’s and colitis advocacy?

22nd Nov 202127th Mar 2023 Sahara Fleetwood-Beresford

I can’t hold my pee!

2nd Nov 202127th Mar 2023 Sahara Fleetwood-Beresford

Should we be talking surgery earlier?

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It took me seven years after my #UlcerativeColitis diagnosis to finally talk about the emergency surgery, the sepsis, and the complications that followed. When I started sharing in 2014, I was doing it from a place of anger because I was tired of being misjudged. At the time, I didn't have the language for the grief I was carrying, and even the word "feelings" made me cringe. Not much of a roasting 😂😂 I'd love that! 🌿 Grief is a word we usually associate with losing someone, but when you are diagnosed with a lifelong #ChronicIllness, you are grieving too. You are grieving the loss of your healthy self, the person you were in your best memories, and the future you thought you would have. Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need.
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Sahara Fleetwood-Beresford | Patient Advocacy
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