Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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2nd Jun 20187th Dec 2023 Sahara Fleetwood-Beresford

What people with IBD should know

20th Oct 2023 Sahara Fleetwood-Beresford

Research opportunity | Budesonide in IBD online workshop

20th Jul 202320th Jul 2023 Sahara Fleetwood-Beresford

Know your rights | GP practices

18th Jul 202318th Jul 2023 Sahara Fleetwood-Beresford

Taking pills doesn’t make me weak

15th Jun 2023 Sahara Fleetwood-Beresford

What’s a RADAR key and where to get one

14th Jun 2023 Sahara Fleetwood-Beresford

Research opportunity | Mind-Body IBD Study

1st Jun 2023 Sahara Fleetwood-Beresford

The tightrope of hope

14th Apr 2023 Sahara Fleetwood-Beresford

Using support groups correctly

4th Apr 202328th Jan 2026 Sahara Fleetwood-Beresford

What topics should stoma nurses be prompting conversations about?

30th Mar 202330th Mar 2023 Sahara Fleetwood-Beresford

Research opportunity | Sex after permanent stoma surgery (survey)

27th Mar 202327th Mar 2023 Sahara Fleetwood-Beresford

Extraintestinal manifestations of IBD

17th Mar 202327th Mar 2023 Sahara Fleetwood-Beresford

How to get copies of your medical records (UK)

3rd Mar 202328th Jan 2026 Sahara Fleetwood-Beresford

What I can eat with a stoma: my experience post-surgery and beyond

14th Feb 202318th Mar 2024 Sahara Fleetwood-Beresford

Preparing to present at A&E

13th Feb 20233rd Feb 2026 Sahara Fleetwood-Beresford

Research opportunity | Well-being, Gut Health & Science: Patient-reported outcomes in Inflammatory Bowel Disease

26th Jan 202327th Mar 2023 Sahara Fleetwood-Beresford

What to put in an emergency ostomy bag change kit

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Just sharing my #IBD / #UlcerativeColitis diagnosis story from waaaay back in 2007! 😳 If you start reading my post and it doesn’t resonate with you, it’s not for you. And that’s OK! It’s not all about you… THANK YOU so much to everyone who has sent images or requested the information. We've had lots already and have many more on the way, so I'll be turning the comments off now. I think we have plenty to be getting on with 🥰 Activation warning ⚠️ Part 2: Morphine #overdose in-patient experience. Activation warning: In-patient traumatic experience #IBD and food fear: What the latest research tells us https://advocatinghealth.com/2026/02/26/ibd-and-food-fear-latest-research/ One of the first questions I had after my #stoma surgery was whether I'd ever be able to lie on my front again. It shouldn't need saying 🙄 The clinical notes usually tell one story, but they often leave out the mental weight of living with a #ChronicIllness. Why would she post that?!! 😳 A diagnosis changes so much more than just your medical records. It often shifts your entire identity, and it is completely valid to mourn the life you thought you would have. It's #EndometriosisAwarenessMonth, and I'm talking about the frustrating diagnostic loop that so many of us find ourselves stuck in. When you live with #ChronicPain in the pelvic or abdominal area, getting a clear diagnosis often feels like a game of ping-pong between specialists.
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