Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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2nd Jun 20187th Dec 2023 Sahara Fleetwood-Beresford

What people with IBD should know

17th Oct 202428th Jan 2026 Sahara Fleetwood-Beresford

Swimwear for women with an ostomy

20th Sep 202428th Sep 2024 Sahara Fleetwood-Beresford

Fibromyalgia – the journey so far

6th Sep 20246th Sep 2024 Sahara Fleetwood-Beresford

Product testing opportunity | Ostomy leakage detection system

16th Jul 202418th Feb 2026 Sahara Fleetwood-Beresford

The role of the nervous system in inflammatory and immune conditions

18th Jun 202418th Jun 2024 Sahara Fleetwood-Beresford

Research opportunity | Focus group for new stoma device

1st May 20244th May 2024 Sahara Fleetwood-Beresford

Managing mouth ulcers in inflammatory bowel disease

20th Mar 202428th Jan 2026 Sahara Fleetwood-Beresford

Bowel obstruction experience and fears

8th Mar 2024 Sahara Fleetwood-Beresford

Research opportunity | Digital Health & IBD

29th Feb 20244th Nov 2024 Sahara Fleetwood-Beresford

Healing trauma: Health psychology experience

1st Feb 202428th Jan 2026 Sahara Fleetwood-Beresford

FAQ | Managing different ostomy output

2nd Jan 202429th Feb 2024 Sahara Fleetwood-Beresford

Healing trauma: My experience of CBT, talking therapy and medication

21st Nov 20232nd Jan 2024 Sahara Fleetwood-Beresford

Healing trauma: Feeling like I’m not enough

16th Nov 202316th Nov 2023 Sahara Fleetwood-Beresford

Healing trauma: What is trauma?

13th Nov 20234th Jun 2024 Sahara Fleetwood-Beresford

Fertility testing journey | A short recap

12th Nov 20238th Nov 2023 Sahara Fleetwood-Beresford

Fertility testing journey | The conclusion

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It took me seven years after my #UlcerativeColitis diagnosis to finally talk about the emergency surgery, the sepsis, and the complications that followed. When I started sharing in 2014, I was doing it from a place of anger because I was tired of being misjudged. At the time, I didn't have the language for the grief I was carrying, and even the word "feelings" made me cringe. Not much of a roasting 😂😂 I'd love that! 🌿 Grief is a word we usually associate with losing someone, but when you are diagnosed with a lifelong #ChronicIllness, you are grieving too. You are grieving the loss of your healthy self, the person you were in your best memories, and the future you thought you would have. Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need.
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