Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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2nd Jun 20187th Dec 2023 Sahara Fleetwood-Beresford

What people with IBD should know

11th Dec 202028th Jan 2026 Sahara Fleetwood-Beresford

Enjoying the festive season with a stoma in 2020

3rd Dec 202027th Mar 2023 Sahara Fleetwood-Beresford

What’s going on in Inflammatory Bowel Disease research?

25th Nov 202027th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my career

21st Nov 202027th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my education

17th Nov 202010th Apr 2024 Sahara Fleetwood-Beresford

How do you empty your ostomy bag?

16th Nov 202028th Apr 2023 Sahara Fleetwood-Beresford

What causes a J-pouch to fail?

3rd Nov 20203rd Apr 2024 Sahara Fleetwood-Beresford

I don’t always like my stoma

23rd Oct 20203rd Apr 2024 Sahara Fleetwood-Beresford

Theme parks with a stoma

3rd Oct 202024th May 2024 Sahara Fleetwood-Beresford

Why ostomy awareness is important to me

29th Sep 20205th Feb 2024 Sahara Fleetwood-Beresford

FAQ | Parastomal hernia prevention: Tips and insights

28th Sep 202027th Mar 2023 Sahara Fleetwood-Beresford

The unpredictability of Inflammatory Bowel Disease

14th Sep 202023rd Nov 2023 Sahara Fleetwood-Beresford

How and why I got back into exercise after stoma surgery

11th Sep 20201st Nov 2023 Sahara Fleetwood-Beresford

How I felt when I found out that I needed a stoma

7th Sep 202027th Mar 2023 Sahara Fleetwood-Beresford

A new diagnosis – fibromyalgia

24th Aug 202027th Mar 2023 Sahara Fleetwood-Beresford

How much control do we have over our triggers?

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It took me seven years after my #UlcerativeColitis diagnosis to finally talk about the emergency surgery, the sepsis, and the complications that followed. When I started sharing in 2014, I was doing it from a place of anger because I was tired of being misjudged. At the time, I didn't have the language for the grief I was carrying, and even the word "feelings" made me cringe. Not much of a roasting 😂😂 I'd love that! 🌿 Grief is a word we usually associate with losing someone, but when you are diagnosed with a lifelong #ChronicIllness, you are grieving too. You are grieving the loss of your healthy self, the person you were in your best memories, and the future you thought you would have. Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need.
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Sahara Fleetwood-Beresford | Patient Advocacy
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