Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Author: Sahara Fleetwood-Beresford

23rd Mar 202021st Apr 2023 Sahara Fleetwood-Beresford

FAQ | Iron deficiency anaemia in IBD – causes, symptoms & treatment

11th Mar 20203rd Feb 2026 Sahara Fleetwood-Beresford

PoPSTER | Patient preferences & current Practice for adults with steroid resistant UC

6th Mar 202027th Mar 2023 Sahara Fleetwood-Beresford

Major life changes due to diagnosis

5th Mar 202030th Mar 2023 Sahara Fleetwood-Beresford

Research opportunity | resilience in IBD study

19th Feb 202027th Mar 2023 Sahara Fleetwood-Beresford

Online Ostomy! What's going on in the online ostomy community?

10th Feb 202027th Mar 2023 Sahara Fleetwood-Beresford

The Additional Stress of Moving and Busy Times

4th Feb 202027th Mar 2023 Sahara Fleetwood-Beresford

KTMY | The Chronically Living Series: Sahara, Founder of #IBDSuperHeroes

29th Jan 202027th Mar 2023 Sahara Fleetwood-Beresford

Is it all in my head?

22nd Jan 202028th Mar 2023 Sahara Fleetwood-Beresford

IBDRelief | Sahara Fleetwood-Beresford – My IBD Story

18th Dec 20191st Nov 2023 Sahara Fleetwood-Beresford

Feeling lonely is more normal than you think

18th Dec 201928th Mar 2023 Sahara Fleetwood-Beresford

Fittleworth Medical introduce "Patient blogs" ~ by me

2nd Dec 201927th Mar 2023 Sahara Fleetwood-Beresford

Frustrations of an Invisible Illness

1st Dec 201927th Mar 2023 Sahara Fleetwood-Beresford

7 blogs for 7 days – Crohn’s & Colitis Awareness Week

25th Nov 201928th Mar 2023 Sahara Fleetwood-Beresford

“At least it’s not cancer”

20th Nov 201927th Mar 2023 Sahara Fleetwood-Beresford

Balancing work, IBD and an ostomy

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Life has been a bit chaotic lately! Between the additional tasks of researching and publishing new articles for IBD Science, doing separate dog walks every morning to work on individual behavioural issues (Loki is a barker and Aragorn is a puller!), and a vet visit for Lady’s cheek infection, my energy has been stretched! https://www.instagram.com/p/Db7xtK1sGss/ When living with a #ChronicIllness, we often talk about getting through the flare, recovering from surgery, or managing the daily symptoms. But what happens after the storm clears? It's strange that it's completely normal to me to start a Saturday with movement that helps manage my pain, followed by a catch up with people I only know because of our shared health conditions, whilst organising my meds for the week. Afterwards, I organised and cut my latest #ostomy supply delivery. Only then did I realise that for a "normal healthy person", this is not a standard day 😂 This is the day of a person who's spent so many years adapting to their chronic conditions, that this is MY normal 💜 I'll give you two ✌️ guesses where this peppermint oil ended up after I'd dropped a few drops 💧 in my #ostomy bag whilst on the toilet 🚽... It's ok to ignore the pile of washing 🧺 in favour of rest. It's very likely that the person judging you most for it, is you. If it isn't, kick them to the curb - you don't need that kind of negativity or lack of understanding in your life 👋😂 28°C in the UK today! Hot weather brings extra challenges when you live with an #ostomy: dehydration, baseplate adhesion issues, and skin irritation. Here, I share practical tips to help you navigate heatwaves safely https://advocatinghealth.com/2018/07/07/ostomies-and-hot-weather/ 💜✨ Have you ever been told that your symptoms are all in your head, or left a doctor’s appointment feeling dismissed because tests came back clear? Living with chronic conditions, chronic pain, and emotional exhaustion can leave you feeling really isolated! 💜 https://www.instagram.com/p/DbL5Xb2sWdC/ It's been a slow start kinda day. I imagine it'll stay slow 🐌 Having been involved in the original research and the creation of this new #stoma resource, I’m so excited to see it move into the testing phase! Dating with #IBD or an #ostomy can feel like navigating a minefield. You might be wondering when to mention your health, how to handle the anxiety, and whether you're worthy of connection while managing your condition.
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