Sahara Fleetwood-Beresford | Patient Advocacy

Inflammatory bowel disease, ostomy, chronic pain, PTSD, and mental wellbeing.

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Author: Sahara Fleetwood-Beresford

3rd Dec 202027th Mar 2023 Sahara Fleetwood-Beresford

What’s going on in Inflammatory Bowel Disease research?

25th Nov 202027th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my career

21st Nov 202027th Mar 2023 Sahara Fleetwood-Beresford

Series | How my ulcerative colitis impacted my education

17th Nov 202010th Apr 2024 Sahara Fleetwood-Beresford

How do you empty your ostomy bag?

16th Nov 202028th Apr 2023 Sahara Fleetwood-Beresford

What causes a J-pouch to fail?

3rd Nov 20203rd Apr 2024 Sahara Fleetwood-Beresford

I don’t always like my stoma

23rd Oct 20203rd Apr 2024 Sahara Fleetwood-Beresford

Theme parks with a stoma

3rd Oct 202024th May 2024 Sahara Fleetwood-Beresford

Why ostomy awareness is important to me

29th Sep 20205th Feb 2024 Sahara Fleetwood-Beresford

FAQ | Parastomal hernia prevention: Tips and insights

28th Sep 202027th Mar 2023 Sahara Fleetwood-Beresford

The unpredictability of Inflammatory Bowel Disease

14th Sep 202023rd Nov 2023 Sahara Fleetwood-Beresford

How and why I got back into exercise after stoma surgery

11th Sep 20201st Nov 2023 Sahara Fleetwood-Beresford

How I felt when I found out that I needed a stoma

7th Sep 202027th Mar 2023 Sahara Fleetwood-Beresford

A new diagnosis – fibromyalgia

24th Aug 202027th Mar 2023 Sahara Fleetwood-Beresford

How much control do we have over our triggers?

31st Jul 202027th Mar 2023 Sahara Fleetwood-Beresford

Waiting: A Symptom of IBD?

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Don't worry, I haven't gone to the "dark side" 🙈 Having to fact-check everything you see online really sucks. There's a big disappointment in feeling inspired by a story or a cute fact, only to realise it was fake, AI-generated bullsh*t. Whether it’s a heartwarming celeb story that never happened or a perfect AI animal, the lack of digital authenticity makes the internet a weird place! I am currently layered up like an onion, because my nervous system does not like winter! 🏳 Study morning 📖🖊 When I first looked for information on #Pregnancy after bowel surgery, I found plenty of clinical statistics, but very little that felt real. I wanted to know what it actually felt like in a body like mine, with seven surgeries and a complex history. It looks like ChatGPT thinks I'm a psychologist 😂 Remind yourself who the Fuck you are today. You are good enough! ✨ When we live with #Crohns, #Colitis, or #Fibromyalgia, we are experts at the physical talk. We can list meds and explain a #Stoma without blinking, but the mental toll is often much harder to put into words. Just a quick update in response to the comments on the previous post asking people if their sensura mio was behaving! I had a lot of comments recommending things, so I just want to clarify, I'm not looking for additional products. IF something has changed in the manufacturing process or the adhesive, then I'll obviously need to shop around for a new bag, but it was just a manufacturing error that is not ongoing, then there's zero need. I started this blog almost 12 years ago. So much has changed since then. Life with #InflammatoryBowelDisease, an #ostomy, and #fibromyalgia means I'm constantly evolving, sometimes by choice and sometimes because my body demands it. I’m just popping in to say hi 👋 and check in on how you're doing. #Ostomates, I'd love to hear from Sensura Mio users!
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