I regularly find myself “nagging” at people because they’re suffering, but not contacting their healthcare professionals (HCPs). Often using reasons such as work or other commitments. We often don’t feel like we have time to be sick! So, as long as we can plod on, we do!
Many of us also don’t want to start the back and forth of fighting to be heard. We know that it’s usually not just one appointment and some answers. It’s multiple appointments, often trying to make HCPs believe how unwell we are because our bloods and Calprotectin are “within normal range”. That’s often a learnt expectation based on previous experiences. Even if they immediately say “OK. Let’s check where we’re at”, that means tests, waiting for the tests, and waiting for results.
In the rest of this blog, I talk about the difficulties we face and why when it comes to contacting our IBD team. I also share some of my experiences, and why it’s important we take that first step sooner rather than later.

I regularly find myself “nagging” at people because they’re suffering, but not contacting their healthcare professionals (HCPs). Often using reasons such as work or other commitments. We often don’t feel like we have time to be sick! So, as long as we can plod on, we do!
Many of us also don’t want to start the back and forth of fighting to be heard. We know that it’s usually not just one appointment and some answers. It’s multiple appointments, often trying to make HCPs believe how unwell we are because our bloods and Calprotectin are “within normal range”. That’s often a learnt expectation based on previous experiences. Even if they immediately say “OK. Let’s check where we’re at”, that means tests, waiting for the tests, and waiting for results.
In the rest of this blog, I talk about the difficulties we face and why when it comes to contacting our IBD team. I also share some of my experiences, and why it’s important we take that first step sooner rather than later.